Athena Sanchez graduates from Northern Arizona University. (Courtesy of Athena Sanchez) This is Athena Sanchez’s story: Living with myasthenia gravis (MG) is like constantly fighting a battle, and my body doesn’t always…
Myasthenia Gravis Awareness Month
Throughout June, Myasthenia Gravis News is recognizing Myasthenia Gravis Awareness Month with a variety of stories that represent different perspectives on life with myasthenia gravis that we hope will help to inspire and empower our readers. These stories highlight some of the unique challenges of living with myasthenia gravis, as well as stories of hope, inspiration, and other topics that help to generate awareness among the myasthenia gravis community. Follow along with the series here or visit us on Facebook, Instagram, or X using the hashtag #MGAwarenessMonth.
Jennifer Crow, who lives with MG, says she no longer silences herself. (Courtesy of Jennifer Crow) This is Jennifer Crow’s story: When I was first diagnosed with myasthenia gravis (MG), I thought having…
Mohammed Hanafi and Sarah Bendiff, seen here at a shooting range in Algeria, where they live, have together learned how to adapt to life with MG. (Photo courtesy of Sarah Bendiff) Note: Mohammed Hanafi’s…
Yvette Bernal, left, with her daughter Eliza Roman as Eliza prepares to graduate high school. (Photo courtesy of Yvette Bernal) This is Yvette Bernal’s story: During my senior year of high school, I found…
Charlotte Laycock receives a plasma exchange to help control her myasthenia gravis. (Photos courtesy of Charlotte Laycock) This is Charlotte Laycock’s story: Being diagnosed with generalized myasthenia gravis (MG) in my early 30s…
Stefanie Shea and her husband, Dave Akers, attend a recent concert. Shea is in her power wheelchair, which enables her to leave the house and participate. (Courtesy of Stefanie Shea) This is Stefanie Shea’s…
Wayne Seward was diagnosed with generalized myasthenia gravis in 2024. (Courtesy of Wayne Seward) This is Wayne Seward’s story: I was officially diagnosed with generalized myasthenia gravis (gMG) in February 2024. However, my…
Joe Enders and his daughter, Jodi, smile at a Florida spring two months after her thymectomy surgery. (Courtesy of Joe Enders) This is Joe Enders’ story: When our daughter was diagnosed with myasthenia…
Barry Stalker works out at the gym, his favorite place to challenge himself mentally and physically. (Courtesy of Barry Stalker) This is Barry Stalker’s story: I was always an active teenager. I played a…
Jodi Enders reflects on her favorite place for creative inspiration and relaxation: the Everglades in Florida. (Courtesy of Jodi Enders) This is Jodi Enders’ story: I was diagnosed with myasthenia gravis (MG)…
Kristina Kelly holds her dog Noah. (Courtesy of Kristina Kelly) This is Kristina Kelly’s story: It took five neurologists, five years, and a lot of being told “but your labs are normal” before I…
Mike Stabile holds his grandson, Alex Stabile, while in between myasthenia gravis flare-ups. (Courtesy of Mike Stabile) This is Mike Stabile’s story: There are no physical signs that I have myasthenia gravis (MG).
Retha De Wet enjoyed three happy years in remission from myasthenia gravis, during which time she gave birth to her daughter. But her symptoms have recently reemerged. (Courtesy of Retha De Wet) This is…
Jasmine Nathan was diagnosed with generalized myasthenia gravis with thymoma in 2018, but now has her gMG fully managed. (Photo courtesy of Jasmine Nathan) This is Jasmine Nathan’s story: It was the summer of…
Deborah skydives over Longmont, Colorado. (Photos courtesy of Deborah White) This is Deborah White’s story: After several months of sporadic double vision, I started to experience drooping eyelids while on a business trip.
(Photos courtesy of Jennifer Thompson) This is Jennifer Thompson’s story: When I signed up to share a specific way in which myasthenia gravis (MG) has affected me, I had to really pause and…