Sifting through regret over things left unsaid
“It’s the things that are left unsaid that take up the most space in our hearts.” I don’t know who wrote that, but it reminded me about how much has been left unsaid between…
Me, My Brother, and MG — Allen Francis
Allen Francis is a New York City native, graduate from Marymount Manhattan College, and a former college advisor. He writes from his experience of having a twin brother, Aaron, who has been afflicted with myasthenia gravis (MG) since 1999. From his perspective of a loving sibling, Allen wants to learn more about MG and advocate for more awareness about the rare and medically unknown condition. Allen is also a lifelong comic book fan dedicated to launching his own company writing comic books with his twin.
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My twin had thymectomy surgery 26 years ago, but I didn’t know
In the Irish writer Oscar Wilde’s play “The Importance of Being Earnest” (1895), he writes that memory “is the diary that we all carry about with us.” Still, our memories can’t always be trusted;…
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A lesson I learned about eye misalignment and popular media
You’ve probably heard of the saying, “The eyes are the window to your soul.” Yet how do we judge people when their eyes are misaligned through no fault of their own? Do we still…
My twin needs his MG medicines forever, which I didn’t understand
This column describes the experiences of the author’s brother with side effects to several MG medications. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a…
My brother knew something was wrong long before his diagnosis
Dr. Seuss once said, “Sometimes you will never know the value of a moment until it becomes a memory.” That’s another way of saying you never know what you have until it’s gone, whether…
MG has limited my brother’s career options, but not his identity
Identity is how we define ourselves, and it can be established through nature or nurture, voluntarily or not. Part of our identity may even be shaped by the person we imagine ourselves to be…
The muscle weakness from my twin’s MG is worse than I realized
Author Tom Clancy once wrote, “Surviving is much more painful than death.” Realizing how much my twin brother, Aaron, has been surviving with myasthenia gravis (MG) since his…
In wearing sunglasses, my twin was hiding MG, not trying to look cool
Sometimes we say so much about unimportant things that we leave the important things unsaid. Or, we talk about important things using codes or euphemisms. After all, some studies suggest that more than…
My twin works hard to stay active, despite the challenges of MG
One thing that always amazes me about my twin brother, Aaron, is his drive to stay as positive and active as possible. Aaron was diagnosed with myasthenia gravis (MG) in 1999 at the…
My brother and I discuss more eye-muscle surgery for him
“Contentment is not the fulfillment of what you want, but the realization of how much you already have.” That quote from an unknown author is one of my favorites. Contentment is a mindset we…
Though he can’t work as he once did, my twin stays positive
Oprah Winfrey once said, “Where there is no struggle, there is no strength.” Others have found their own ways to express this idea. The way we deal with adversity reveals our character. It can…
Coping with myasthenia gravis meant staying silent
“Silence is a true friend who never betrays,” Confucius once said. There is so much modern science doesn’t know about myasthenia gravis (MG). It must be taxing and frustrating for people with MG…
