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  • Vicky Safferson

    Member
    September 30, 2021 at 2:47 pm in reply to: Summary of IVIG Side Effects

    My husband is currently in the hospital for his first IVIG series.  Mestinon and Prednisone were ineffective in controlling his double vision and drooping eyelids.  He has now completed two infusions of a four infusion regimen, which is being administered at 10:00pm.  He is being pre-medicated with Benadryl.  When he wakes up after the infusion, he is experiencing throat tightening, difficulty with swallowing, esophageal burning, thick post nasal drip, and dizziness, which are being attributed to the Benadryl.  His doctor says that administering Benadryl is part of the IVIG regimen, and there are really no alternatives.  Has anyone else experienced similar side effects, and if so, what did you do about it?  So far the IVIG has had little effect on his MG symptoms, but he wants to complete the series to see if it will help.  But the Benedryl side effects are making this a horrendous experience.