Quentin
Forum Replies Created
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I had severe leg twitching when I was on Mestinon it was pretty awful, 1 about every 14 to 20 seconds. I also had quite frequent what I would call “whole body electric shocks” but on the flip side Mestinon allowed me to see again after 2 weeks of not being able to properly open my eyes. I spoke to my Neurologist about it and he didn’t really know what was going on, but still kept me on the Mestinon. After a year of that and a massive life style change I just stopped taking it and I am now on just prednisone. The twitching has gone and I am grateful of that.
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I had my first Pfizer vaccine in September and 4 weeks after I had my first attack which has since been diagnosed as MG. I am now under a lot of pressure from doctors and friends to get a second shot, but I have serious doubts and it seems easy for people to give out this advice when they are not the ones in the line of fire. I am now taking Mestinone 4 times a day, and although my syptoms have improved, my eyesight is still not great and I struggle going outside in the daylight. My left arm and leg get tired easily, I have almost continuous leg spasms, and I suffer from acute fatigue. I have also developed tinnitus in my left ear which is constant. As an unvaccinated person (although I am single vaccinated) I can no longer enter any cafe or restaurant, cinema, barbers, public building or any business that chooses to bar unvaccinated people. My Neurologist refuses to even entertain the idea that there is any connection between vaccines and MG and the government has instigated a campaign of fear and hate. I now feel very uncertain about my future and find myself withdrawing from society everyday.
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I feel exactly the same. I had a normal life and 14 days after the vaccine everything changed forever. But yet according to my neurologist I am just unlucky. So they have not medically noted or reported any connection with the vaccine and my MG and ironically one of the reasons that they gave as to the vaccine not being a factor was that that were no other cases. Their flat refusal without any investigation to even consider the possibility that my MG was at least a catalyst rings alarm bells. I will never believe that the timing of this illness which came without warning was just a coincidence.
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I feel your pain, I had my first Pfizer shot in September and 4 weeks after, and just before I was about to get my 2nd shot I have my first ever MG attack. My Neurologist says that I probably had it any way and now I should more than ever before have the second shot to protect my now compromised immune system. I however have serious doubts, my life is now changed forever and I feel a second shot could make me worse. And on top of having to come to terms with the nasty effects of this illness mentally and physically, I am now also restricted to where I can go, certain retail and I have lost friends over this. Our government is also in total denial that anyone is suffering from the vaccine’s effects and have promoted a campaign of hate against the unvaccinated no matter what the reasons.