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  • Peter Hardcastle

    Member
    January 15, 2022 at 9:25 am in reply to: Anybody experience swelling in the legs?

    I got something similar the first and only time I used prednisone about 3 years ago. Never did use it for the MG. I have hereditary problems with edema and DVT going on for 30-years so the swelling wasn’t unusual, just more severe than usual. Even with my experience the swelling was very difficult to deal with and I am still dealing with the remnants today. All the doctors would say is take lasix and elevate your feet and then left my PT to deal with the problem. I was using compression socks at the time but switched to “compression wraps” to get increased compression “30-40” with greater ease of donning. I also use lymphatic massage which I have found to be very effective. However, Medicare generally will not pay for it so I had to learn to do it myself. The Medicare rules may be different if there are open sores. Bought one of those fancy beds that allows you to raise the feet when sleeping or lying down by remote control (this is very effective). I use lasix, 20 to 40 mg per day. Use Lite Salt 50% Sodium – 50% Potassium. And try to keep my legs moving to keep circulation going, even if it’s nothing more than exercises. All of these methods should help, some more than others, but you will need to find out what works best remembering every person is different. Of course, the most important thing would be to get off the prednisone.