Forum Replies Created

  • Bret Krauss

    Member
    September 21, 2021 at 3:48 pm in reply to: Reaction to IVIG Treatment

    I have been going for IVIG treatments for the last 20 years and go for 2 days in a row every 4 weeks. I get 150 grams over the two days. When I first started going for it I handled it quite well and got the odd Migraine afterwards and for the first couple days after the treatment felt a little tired. after a few years I started to get Migraines pretty much every time I went so to help with that they started to take my stuff out prior to my treatment and warming it up to room temperature and then the Migraines pretty much went away. Unfortunately within the last few years the migraines have came back again even with them warming it up to room temp so I have recently started the SCIG home infusion program and things have been going very well so far with that. I have done my third treatment now and I have not gotten ay side affects so I’m hoping this works. It should help quite a bit more because I do treatments once a week so it keeps my levels up and its smaller doses to minimize the side effects. When I first started going for IVIG this home infusion wasn’t even an idea so its pretty cool to see the advancements that are being made.

    • Bret Krauss

      Member
      September 21, 2021 at 7:37 pm in reply to: Reaction to IVIG Treatment

      The IVIG has helped me so much it has given me somewhat of my life back. Before I was diagnosed I couldn’t walk 500 feet and would fall down and wouldn’t be able to get up by myself it was horrible going from playing every sport and never stopping to that. Huge mental strain!

      Now with the Mestinon, Prednisone, Azathioprine & IVIG treatments I can actually hold a full time job and do some physical activities like skiing, biking & hiking obviously taking tons of breaks while doing those activities but none the less able to get out there and do them at my own pace.

      I don’t even want to think about what I would be like without the IVIG treatment. and now like I mentioned I have just recently started the SCIG Sub-Q home infusions which are going great so far.