[Junker]

I have been told that muscle pain and cramps (especially at night) would not be related to MG although I had the strong feeling that it would occur subsequent to physical work aund exercise. Gaining lots of weight in the course of my first MG year, a lot of symptoms and probelmes were simply associated with being too fat. Meanwhile I I have learned to provide sophisticated and well-founded responses to such superficial presumptions.

[Junker]

I find it hard enough to socialize at all. Given my lack of mobility for the last towo years I became fairly isolated. And at the age of almost 60 it seems like dating life is over…

[Junker]

I dramatically gained weight during my first year with MG and the high dose of cortisol (100mg daily over months) lead to increased appetite and terrible cushing syndrome. Tried to start all kinds of diet efforts without any successs at all.

I had to learn patience. Reduction of cortisol doses took months and even when I finally got down to 5mg, my body would still not react to any diet changes. After all November last year I found some balance and started a diet substituting 2 daily meals by specific shakes or bars. Lost 25kilos since then which enabled me to physically work on my muscle deficiencies.

Despite this success I am well aware that I need to find a more balanced diet. Substituting meals by fabricated products might have been a good way to get started on the long run, however, I still need to learn which kind of food helps to cope with MG. Thankful for any advice. 😉

[Junker]

I became member of DMG (German Myasthenia Society) and try to participate in meetings of local groups. Given that I am still feeling socially isolated in my second year as a MG patient, contact to other patients made a difference. For the first time I really felt understood and accepted. Right now I am taking further steps to cope with isolation.

[Junker]

Very interesting and helpful. Thank you very much!