Forum Replies Created

  • john-shanks

    Member
    June 16, 2023 at 3:13 pm in reply to: How Is The Pandemic Still Affecting Your Life?

    I still wear a mask when I go out. I avoid stores like Home Depot because of the animosity of the other customers to the mask. (Verbal abuse and physical assault). People think its political. I hope it is just Florida. Travel using our car. I will soon travel by air, just goung to mask up and hope.

  • I was diagnosed 3 years ago and my major issue is breathing/diaphram weakness. I had a sleep study and was told I needed a CPAP. I had difficulty breathing out while trying to overcome the pressure.  Even the BiPAP set at 6 and 3 was too much. my O2 levels dropped dangerously low. I would  suggest that someone with a similar condition have someone monitor your use until you know it is not a problem for you.

  • john-shanks

    Member
    September 28, 2022 at 9:16 pm in reply to: Mestinon 60 mg verses Mestinon XR 180 mg

    I currently take 60mg three times a day and 180ER at night. While it does improve my sleep, I have had two instances where the prescription was defective and did not break down in my system.  My sleep was seriously affected and had serious fatigue issues. Be aware that is a possibility. Good luck!

  • john-shanks

    Member
    April 27, 2022 at 8:18 pm in reply to: Mestinon 60 mg verses Mestinon XR 180 mg

    I take 60mg three tines/day and 180 XR at night. Was waking up with breathing issies before. Feeling better now I get more sleep. I hope you do as well.

    John

  • john-shanks

    Member
    February 5, 2022 at 12:56 am in reply to: How Has Myasthenia Gravis Altered Your Career?

    I was a business owner. We manufactured countertops. I no longer had the strength to lift the materials. The double vision meant I could no longer travel to measure jobs.  I sold out to a competitor and retired. I had planned to travel in retirement, but its just isn’t safe. The drugs I take compromise my immune system and people have been politicized to the point they won’t wear masks or get vaccinated. God help us all.