Cme4a4d
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My regular treatment regime was followed for 3 years after thymectomy then 6 years in remission. Coming back now.
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A to go bag is essential. Try to duplicate in small measure everything you need at home. Take it with you if an ambulance transports you to hospital and in your car so you are always prepared. Hopefully you will not need to use it, but it saves the day when you do.
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First time, crisis in ‘11 was about 3 weeks. Was intubated and started on plasmapheresis. Had central line for about 2 years and had the procedure 31 times, followed by massive doses of prednisone and 2 more years of retuximab infusions. Have landed in hospital too many times and the disruption of daily activities hd been catastrophic.