Alan Wilgus
Forum Replies Created
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I am not sure if what I experience is caused by the prednisone or Cellcept? I have been on prednisone since April (down to 20 mg daily) and starting in June Cellcept 500mg daily. The plan was to increase Cellcept to 500mg twice daily but I developed a stubborn Thrush infection so he said to hold off a while pending blood tests. (white blood count & glucose elevated)
I also wake up during the night and have trouble going back to sleep, I bruise and bleed very easily, my face especially around my eyes feels swollen and puffy, I have gained weight, and it seems I am developing slight tremors in my hands. It is hard to know if my fatigue is due to sleeplessness or MG? All in all I count myself lucky that this is all that I have going on.
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I am back from my 23 day trip to Morocco and Tunisia and I want to thank everyone again for the good advice. My symptoms resolved before I left and did not return to ruin things. I remained on 40mg Prednisone daily but due to stomach issues cut my Mestinon down dramatically to  30 mg twice daily. I took the medication during the middle of meals as many advised and that worked well. I also tried to eat smaller portions avoiding fried foods. I drank booze but not to excess. On international trips trip insurance is a smart buy MG or not…but especially now with MG. I carried my MG medical history and a list of drugs to avoid. Best advice was to just do it!
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Thank you to everyone who responded with travel advice. Some very good points were made that I have applied to my preparations. And of course the range of responses once again reinforces how MG is an individualized disease.