@alwilgus
-
Alan Wilgus replied to the topic Mycophenolic acid-Myfortic and CellCept- Side Effects with Myasthenia Gravis in the forum Healthcare and Myasthenia Gravis 3 weeks, 4 days ago
I am not sure if what I experience is caused by the prednisone or Cellcept? I have been on prednisone since April (down to 20 mg daily) and starting in June Cellcept 500mg daily. The plan was to increase Cellcept to 500mg twice daily but I developed a stubborn Thrush infection so he said to hold off a while pending blood tests. (white blood count…[Read more]
-
Alan Wilgus replied to the topic Any Tips For Traveling Internationally With MG? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 2 months ago
I am back from my 23 day trip to Morocco and Tunisia and I want to thank everyone again for the good advice. My symptoms resolved before I left and did not return to ruin things. I remained on 40mg Prednisone daily but due to stomach issues cut my Mestinon down dramatically to 30 mg twice daily. I took the medication during the middle of meals…[Read more]
-
Alan Wilgus replied to the topic Any Tips For Traveling Internationally With MG? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 4 months ago
Thank you to everyone who responded with travel advice. Some very good points were made that I have applied to my preparations. And of course the range of responses once again reinforces how MG is an individualized disease.
-
Alan Wilgus started the topic Any Tips For Traveling Internationally With MG? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 4 months, 1 week ago
I was diagnosed with ocular MG a year ago and resolved on its own after a couple weeks. In March my ptosis returned along with trouble swallowing, talking & chewing. After one week of Mestinon 60mg (2 tablets 3 times daily) with no relief, prednisone 20mg (2 tablets daily) was added and after a week symptoms resolved.
Next week I am scheduled to…[Read more]
-
Alan Wilgus became a registered member 4 months, 3 weeks ago
Hello, Alan! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]