Myasthenia Gravis News Forums Forums Healthcare and Treatments Walk-in/ self-ordered Myasthenia gravis antibody blood tests

  • Walk-in/ self-ordered Myasthenia gravis antibody blood tests

    Posted by Jodi Enders on July 17, 2023 at 5:00 am

    I recently talked to an individual interested in walk-in or self-ordered Myasthenia gravis antibody blood tests as they were awaiting an appointment with a specialist.

     

    Doing my own research, I believe you can self order Acetylcholine receptor (AChR) but need a physician to order tests for Muscle-specific tyrosine kinase (MuSK) and Low-density lipoprotein receptor-related protein 4 (LRP4). Can anyone tell me if this is true or if you had the standard MG antibody tests without a doctor’s order? Please also mention your country.

     

    If anyone has had difficulty receiving tests for LRP4, please share where the problem is and if you were able to find a solution to receive the test.

    Barbara E. replied 1 year ago 1 Member · 1 Reply
  • 1 Reply
  • Barbara E.

    Member
    July 19, 2023 at 4:05 pm

    When my eyes started to droop, my primary care physician ordered the blood test to speed up the process when I’d eventually be able to see the neurologist.

    Keep in mind that a negative blood test can be an indication of seronegative MG (meaning that it’s an unknown antibody). This was my case and it allowed me to save time by moving to the next test with the neurologist.

Log in to reply.