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rituximab
Hi
I have been fine for the three years. I get a treatment of rituxamab every six months. My neurologist now it extending to an infusion every 8 months. I am 83 and was diagnosed in 2018 with ocular mg. It later became symptomatic in my face and jaw. weight lose etc. I saw a specialist in 2020 after mestonin and the usual panic investigation. He is an expert Dr. Richard Lewis @ Cedar-Sinai who said rituxamab was the answer and it was for me. I am off all meds and have had no adverse side effects with the 3-4 hour infusion at Kaiser in Los Angeles. Just wanted to add my recommendation for this drug. Also a lot of prayer!
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3 Replies
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Are there any side effects from this medication? A nurse I was talking to said that they had great results with giving this drug. I’m on Vyvgart right now and at first it seemed great; I had more energy and less fatigue and weakness. Now after 9 months, it doesn’t seem to have much of an effect on any of my symptoms. Now I am barely able to wait for the 4th week of the off cycle. So I’m considering asking my Neurologist if I can try it.
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I was diagnosed with MG-MuSK+ in 2009. I see my neurologist at Stanford as needed. I’ve had several plasmapheresis treatments, am currently on cellcept 2000mg/day and mestinon 60mg up to 5x a day. I was coming out of ICU 5 months ago and I had retuximab in hopes for better control of symptoms. I didn’t have any side affects from the infusion and would take another without hesitation if needed. Good luck to you.
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i was hospitalized twice about 8 years ago as i was unable to swallow as a result of my MG. i was prescribed a course of Rituximab and my symptoms were significantly reduced. i have lived a fairly normal life since. i still have some difficulties with speech and swallowing and may soon be in need of a further course of Rituximab.
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