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  • Respiratory failure and intubation.

    Posted by Jennifer Thompson on September 27, 2023 at 2:39 pm

    Good Afternoon,

    After a lapse in infusion due to good ole insurance I had to be intubated for four days. Has anyone else experienced this severity of breathing issue?

    Thank you,


    Lou DeYenno replied 7 months, 3 weeks ago 2 Members · 1 Reply
  • 1 Reply
  • Lou DeYenno

    September 29, 2023 at 3:24 pm

    I had my first MG crisis Memorial Day weekend 2022. I made it to the ER just in time. I walked in with my wife, sat down and 3 days later woke up in the ICU with ivs, tubes and mittens! I was to say a bit disoriented and was told I was very lucky ( blessed)…my 2nd crisis/flare happened March 2023 but this time I was aware of the situation and did not need intubation… but spent 10 days in icu, had plasmapheresis treatment and continued with my drugs…

    I’m finally back to my normal….

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