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    • #18679
      Michelle Gonzaba
      Moderator

      Have you had any recent MG victories or wins? Has a new medication worked well for you? Did you discover a new tip or trick to help with your MG?

    • #18707
      Brad Herndon
      Participant

      After being recently diagnosed with MG at 60 years old, and being paired with a specialist that was not a good fit, I think I have now found a good match with a Neurologist.  Win! Very engaged, patient, thorough, empathic…and energetic about addressing my concerns and symptoms. On first appointment, I came away knowing so much more than I did from first doc match.  So that is a definite win. Working on medication selection.  After being on Mestinon for a month, along with Prednisone, she quickly assessed that the Mestinon was not helping me. So she had me discontinue.  WIN!  That stuff was wreaking havoc on my digestive track.  Its been two days and I already feel 100% better from a digestion perspective.  Still very early in the process, but starting to see improvements in my Diplopia and Ptosis.  She also confirmed I have Generalized Myasthenia Gravis and showing signs of body-wide affects, so first steps will be to work with Prednisone and maybe introduce another non-steroidal med.  The process will be gradual, but really feeling better about my prognosis.   I am hoping I can see some improvement in endurance and body weakness.  We’ll see.  Really appreciate the opportunity to share and to gain so much great knowledge and information from this member group. Thank you!

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