• Progress Update 12/05/2024

    Posted by JQuest on December 5, 2024 at 4:50 pm

    For those who may be interested:

    I had my 3rd of 4 Vyvgart Infusions on 12/03/24. On 12/05/24 I went in for my first follow up with my neurologist since my diagnosis and everything appears to be working as hoped. I am currently back to my version of normal. (Eyelids, sight, mouth strength, etc.) As of today I no longer have to take the Bromide unless needed which knocks out 3 of those pills per day so that is good news.

    That leaves me taking Vyvgart (once per week, 1 left), 1 1/2 Prednisone daily along with Calcium & Vitamin D2 supplements, and bananas and oranges.

    In March 2025 I will be reevaluated and if all good I’ll start slowly weening off the Prednisone.

    JQuest replied 1 month, 1 week ago 2 Members · 2 Replies
  • 2 Replies
  • mik

    Member
    December 6, 2024 at 5:18 pm

    That’s great progress I hope it will continue.

    • JQuest

      Member
      December 8, 2024 at 10:21 am

      Thank you Mik

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