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Positivity and MG
When I was first experiencing symptoms of MG, I tried to stay positive in front of friends and family who didn’t really understand what I was going through. When I later entered the hospital, they didn’t understand how bad my disease was because I had always seemed so positive to them.
Do people think your positivity equates with being healthy/no symptoms? Why should someone who is “unhealthy” always be negative? Have people assumed something about your health based on your attitude?
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1 Reply
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I recently told only some in my family that I have an autoimmune disease. My wife knows it all of course. Anyway I withheld from family and adult children, grandchildren the specifics including the name – Myasthenia Gravis. My thinking is I don’t want my relationships to be defined by a disease. I will not let a victim mentality creep into my thinking. Yet as you know there is a fall scale war going on in my body. I think staying positive is about yourself. It gives me the determination to fight this daily war. In not sharing my challenges with familiar others I am recognizing two things. They won’t ever understand the shoes I walk in or the war going on inside me. And secondly I am avoiding spending emotional energy on soothing them and their perhaps kind hearted daily reminders of my circumstances.
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