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  • MG may have saved my life

    Posted by Bambilin on September 29, 2024 at 3:47 pm

    A week before Labor Day I followed MG temperature guidelines of going to the ED if it’s over 101.4°F. I had no other symptoms than shivering violently at 102°F. But I was diagnosed with pneumonia and given an antibiotic which seemed to work for 4-5 days. Then my temperature climbed again. If I had not been warned as an MG patient to go to the ED again, I would have gone to bed a week later with 102°F, plus undetected hypoxia and low blood pressure–all signs of sepsis which can be deadly if you don’t receive IV antibiotics immediately. This time I was hospitalized 4 days, received IV antibiotics starting in the ED, and got breathing treatments. MG guidelines may have saved my life. Don’t ignore them!

    Sharon Haw replied 1 week, 6 days ago 2 Members · 1 Reply
  • 1 Reply
  • Sharon Haw

    Member
    October 2, 2024 at 1:20 pm

    I’m glad you’re okay and I’d appreciate knowing which MG guidelines you are referring to. I’ve only seen ones that say that MG patients might not get fevers while taking immune suppressants, and I’ve found that to the be case for me. I’d like to know in case I do get a fever and also to find out what else I’m missing that’s in the guidelines.

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