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Mestinon shortage
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You should all be aware of a Pharmaceutical fact I MULTIPLE checked for accuracy with several drug companies (TEVA, HIKMA, ROXANE), and a psychopharmacologist at my Rx insurance company; EXPRESS SCRIPTS. Any of you can call these people yourselves but they’ll only speak to you; if you sound like you know what you’re doing. I have 16-years medical professional experience and continually research more info.
Generic active ingredient medications of the same drug from one company to the next can legally (FDA Rule) vary by 10% either way, which means one can be 10% higher, another can be 10% lower; for a total net difference of 20%! So when a pharmacy tells you there’s no difference in generics- tell them exactly what I just told you here and watch them try to lie more, or their chins will hit the floor. This is a well hidden fact amongst BIG PHARMA and the FDA!
I’m sure most of you have had new generics work differently, or even not at all; THIS IS WHY. As patients we need to know the truth, but they hide so much from us it’s absurd.
James M.
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And this is relevant to the subject of this thread how?
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Update on getting my 180 pyridostigmine from walgreens in Owasso Oklahoma. On April 25 th got 60 pills. Said would be May 15th or later until more would be available. Today may 17th. Walgreen could get me only 30 pills. Mfg now says June 20th before anymore will be available. Anyone else still having issues.
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Do you have any idea what manufacturer they ordered from? I live in TN near Nashville and I finally found a CVS that had the 180mg ER. They had 3 month’s worth, but now they have run out and say it is on back order. I’m calling around to pharmacies all over middle TN, but no one has it or knows how long it will take to get it.
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I have written before on this subject
I was having bad night time side effects from the 60 mg pills taking them every 6 hours I had bad leg cramps during the night
When I switched to 2 180mg pills one morning and one at night
The cramps subsided
In the interim I have been able to reduce it down to one pill a day which I take every morning with my breakfast
I use to be able to order it from Costco and get them the next day
The last time I ordered them it took a little over a week and I noticed that they changed to a different manufacturer
The best part is that medication supplement from WellCare now covers the entire cost saving me over &100 per 60 day period
They had covered the 60mg but balked at the 180mg until I got the doctor to write them
Check with Costco and I order 2 weeks in advance
Hope this helps
D
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I went through this issue when I was on 30mg tabs which the manufacturers supposedly stopped making. I had to cut the 60mg and they of course crumbled everywhere. I had to get an extra rx so I could get enough. I’ve since learned to ask for an extra rx on all my pills, one for mail order and one for the local pharmacy. That way I can start stockpiling somewhat by staggering the filling of them between the two by a week or so. Since then I’ve never run out but have the equivalent of an extra 3 months supply of almost all of them and I’m stress free as much as can be I guess
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No issue getting the 60 MG Pyridostigmine however no luck at all with the 180 MG slow release pills.
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I too take the 180mg ER capsules, and my local pharmacy told me they were almost out and were unable to order more. I called my National Mail order pharmace – Espress scripts, and they told me that there is currently a shortage, but that the manufacturers had told them that the shortage should be over by end of June or early July, which made me feel better because I currenly have a 90 day supply in my bathroom.
Stan
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Hello,
For 3 months I was only able to get a thirty day supply of the pyridostigmine 180 mg ER and it cost me $187! When usually it costs me $10. My last refill I was shocked to find out that they actually gave me 90 day supply and only charged me $30. The pharmacist at CVS hated that the medication had costs me so much and was hard to find. I hope you are able to get what you need ASAP at a decent price.
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Picked up a 90 day supply today. Was able to obtain from first pharmacy contacted. apparently the supply issues for this drug have begun to ease.
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Unfortunately necessary to revive this thread. My neurologist warned me last week that there was another shortage of mestinon 180. I checked with my pharmacy and they told me one supplier said available stock by end of March and another supplier had no availability date. My prescription is up for renewal 04/01. What is your recent experience with availability?
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Yup. Just like last year, Pyridostigmine extended releaee 180mg is “out of stock.” There is but one American manufacturer and they declined to tell me when it might be available again. My neurologist told me there is no alternative, no substiture. I already take 4 doses daily of regular 60mg pyridostigmine.
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I’m right there with you, again, Maggie! But I found two American companies that produce the Pyridostigmine Bromide Extended-Release 180 MG Tablets and Both “cannot estimate a release date.” I’ve also been told by my mail-in pharmacy that I am on a “long-term wait-list.” Oh Joy, isn’t that reassuring! I’m currently taking two 60 mgs at bedtime and an additional one if I wake up in the middle of the night. But it is not the same effect as the 180’s. Good luck!
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Central coast California here. March was Ty e first time in 22 years that my timespan was on back order. I went to cvs to ask when they will be in stock. They had 1 months worth so I took it. They are searching for more now.
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My order was officially placed yesterday and marked “out of stock”. I have about 40 days on hand. My mail order pharmacy had an estimate of April 14. They are supposed to contact me if available. Of course at twice the price of my retail pharmacy. I will wait until the middle of the month then start scouring all the pharmacies for anyone with available inventory.
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