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    • #17639
      Jodi Enders
      Keymaster

      Children are often well observant. It wouldn’t be out of the ordinary for a kid to ask about our mobility assistance, need for frequent breaks, noticeable eye droop, and speech difficulty. I got to thinking about this question the other day when I respectfully denied gum from a friend, letting them know it’s one thing that makes my mouth weak, and the child with us asked about it.

      How do you respond to children when they ask questions regarding your MG, symptoms, and adaptions?

    • #17645
      Kelley
      Participant

      I’m always honest and age appropriate. For a tracheostomy tube I told them it helped me breathe. For MG, I tell them my muscles are sick. Some kids get concerned because I don’t get “over it” or “better” like their colds… I let them know that it’s really rare for people to get sick like this and kids can’t get sick from me.

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