Do You Have Seronegative MG? How Were You Diagnosed?

[floridayz]

I was diagnosed 7 yrs ago by symptoms only , all tests came up negative or iffy .
Now my doctor says it’s not a neurological problem , and she can’t help me .
I’m curious what others used to be diagnosed .

[jenny]

I was diagnosed in 1990 with the Tensilon test. I am glad that it was still available.

[renna]

I have seronegative MG and it was very hard to diagnose for over a year and several specialists until I finally visited a neurologist who did an EMG and confirmed the MG diagnosis.  I am allergic to steroids so taking 60mg of Mestinon 3-4 times daily and IVIG every 3 weeks.

[john-siberski]

I am a physician which helps.  Diplopia was becoming more of a problem, weakness was increasing, and my suspicions were increasing.  Stopped a neurologist in the hallway at the hospital and asked, “Do I have MG?”  He did one or two things in the hall, replied he thought so, and told me to set up a single fiber EMG.  Our hospital didn’t do them.  I went back to where I trained, a few hours to the north and was diagnosed in the summer of 2009.  The EMG was borderline but combined with the symptoms and the results of the physical the diagnosis was made.  A repeat SFEMG years later was no longer equivocal.  Mestinon controlled symptoms for years.  Now on mycophenolate with a markedly reduced need for mestinon.   Doing OK living within the limits imposed by the disease and age.

[bbernadette]

I was diagnosed with a positive Tensilon test and positive response to Mestinon.  It took almost 8 years for me to receive a diagnosis.

[theresa-l]

I was diagnosed just under a year ago.  I believe it was the EMG test that pretty much confirmed the diagnosis along with the symptoms I was having. I also responded well to the Mestinon.  I was told the excellent results with the Mestinon was very helpful with confirming the diagnosis.