Myasthenia Gravis News Forums Forums Life Hacks and Tips Describe Your Journey With MG in 3 Words

  • Tina

    September 16, 2023 at 12:14 pm

    sick of it

    sick from it

    could be worse

  • James McCay

    September 25, 2023 at 1:57 pm


  • Shelly

    September 25, 2023 at 2:10 pm

    An absolute ordeal

  • Mami

    October 11, 2023 at 7:09 pm

    After a very bad exacerbation crisis that put me in critical condition for 9 days, I was finally diagnosed 5 years ago. I was given Mestinon and IVIG treatments. But unfortunately after a year, I had to stop taking IVIG infusions because it didn’t worked for me any longer. Thanks to my neurologist, I was given Soliris infusions, which it’s also known as the top gun. It worked very well for me. I still had the Mestinon to use if needed. I had to change my doctor since my original neurologist moved out of state. She took me off Soliris because I recovered pretty well, no longer needed it. Now I’m taking azathioprine three times a day and Mestinon if needed. Im feeling good overall as I also changed my eating habits, included light exercising, rest and avoiding stress. I do my best to focus on the things that I could still do. Also I rely on Jehovah God that gives me the strength to endure. I will keep y’all in my prayers. Hoping y’all find the right medication that will help you be more at ease with this misunderstood illness. Take care, be safe.

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