Myasthenia Gravis News Forums Forums Life Hacks and Tips Are Achr and Musk enough?

  • Are Achr and Musk enough?

    Posted by Deleted User on June 14, 2022 at 2:24 pm

    Have you confirmed your “antibody-positive” MG diagnosis with EMG before starting to take Mestinon?

    Karen replied 1 year, 10 months ago 3 Members · 2 Replies
  • 2 Replies
  • Kelley

    Member
    June 15, 2022 at 7:20 pm

    No EMG here before taking Mestinon. Way back in the day (1996/97) I was diagnosed by a positive tensilon test. I had a negative EMG at a later date. I blame the tech using an unaffected muscle above my eye. My eyes rarely experience symptoms. My first symptom was vocal cord sluggishness causing soft voice and hoarseness.

  • Karen

    Member
    June 15, 2022 at 11:49 pm

    I was started on Mestinon empirically with a drastic improvement in sx and have not stopped it since—my official dx (SFEMG as am ACH and MUSK (-))

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