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    • #19320
      Alan
      Participant

      Have you confirmed your “antibody-positive” MG diagnosis with EMG before starting to take Mestinon?

    • #19322
      Kelley
      Participant

      No EMG here before taking Mestinon. Way back in the day (1996/97) I was diagnosed by a positive tensilon test. I had a negative EMG at a later date. I blame the tech using an unaffected muscle above my eye. My eyes rarely experience symptoms. My first symptom was vocal cord sluggishness causing soft voice and hoarseness.

    • #19328
      Karen
      Participant

      I was started on Mestinon empirically with a drastic improvement in sx and have not stopped it since—my official dx (SFEMG as am ACH and MUSK (-))

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