Profile

I am happily married (30 years) mother of 3. After >10 years of limbo was finally diagnosed with seronegative (MG). I am a Nuclear Medicine research physician and  had to retire on disability from my position as a staff clinician in the Molecular Imaging Center, National Cancer Institute, NIH due to progressive respiratory failure due to MG.

I receive PLEX every-other week and am on Mestinon 120mg q4h and take 180mg “Timespan” and use a Trilogy at night

I enjoy quilting, machine embroidery, reading and enjoying life.