Kristina Kelly holds her dog Noah. (Courtesy of Kristina Kelly) This is Kristina Kelly’s story: It took five neurologists, five years, and a lot of being told “but your labs are normal” before I was finally diagnosed with seronegative myasthenia gravis (MG). Like so many others, my journey…
Throughout June, Myasthenia Gravis News is recognizing MG Awareness Month with various stories that represent different perspectives on life with MG that we hope to help inspire and empower our readers. These stories highlight some of the unique challenges of living with MG, as well as stories of hope and inspiration and other topics that help to generate awareness among the MG community. Follow along with the series here or visit us on Facebook or Instagram using the hashtag #MGSpotlight.
Deborah skydives over Longmont, Colorado. (Photos courtesy of Deborah White) This is Deborah White’s story: After several months of sporadic double vision, I started to experience drooping eyelids while on a business trip. A concerned co-worker took me to the emergency room where the physician recommended that I…
Mike Stabile holds his grandson, Alex Stabile, while in between myasthenia gravis flare-ups. (Courtesy of Mike Stabile) This is Mike Stabile’s story: There are no physical signs that I have myasthenia gravis (MG). My last flare-up ended in July, 11 months ago. Previous flare-ups would last two to…
Retha De Wet enjoyed three happy years in remission from myasthenia gravis, during which time she gave birth to her daughter. But her symptoms have recently reemerged. (Courtesy of Retha De Wet) This is Retha De Wet’s story: I have always wanted to be a mother. I’ve always wanted…
Jasmine Nathan was diagnosed with generalized myasthenia gravis with thymoma in 2018, but now has her gMG fully managed. (Photo courtesy of Jasmine Nathan) This is Jasmine Nathan’s story: It was the summer of 2018 in Chicago. I was trying to balance everything. I had a husband, a stepson,…
(Photos courtesy of Jennifer Thompson) This is Jennifer Thompson’s story: When I signed up to share a specific way in which myasthenia gravis (MG) has affected me, I had to really pause and pray. Wow! Living with MG takes a toll in so many different ways, it…
(Photo courtesy of Kathi Timothy) This is Kathi Timothy’s story: As a child, I remember pleading with my mother to please believe me. Believe me that I will clean my room after I go to a friend’s house. Believe me that I really did study. Believe me. Decades later,…
(Photo courtesy of Andrea Barlass) This is Andrea Barlass’ story: Living with myasthenia gravis (MG) has been interesting, for the lack of a better word. Despite the amount of research I did after I was diagnosed, no amount of information could have prepared me for how…
Michael and Carmel. (Photos courtesy of Michael Adam Weinberg) This is Michael Adam Weinberg’s story: I might’ve found myself solo, still meandering lost on this winding, never-beaten path of life, without my myasthenia gravis diagnosis and the consequential medical challenges I’ve faced over the past 17 years.
With MG, Siobhán Mattison says she looks well and can walk — until she can’t. Her kids never mind the ride, though. (Photo courtesy of Siobhán Mattison) This is Siobhán Mattison’s story: I’ve had autoimmune symptoms for much of my life, but I never thought much about it.
Recent Posts
- Zilbrysq safe, effective in real world for treating generalized MG: Study
- The 3 to 5 minutes that act as music therapy for my brother with MG
- Doctors say MG doesn’t cause pain, but my body suggests otherwise
- Taking Vyvgart before thymectomy may help improve surgery outcomes
- Finding ways to reduce suffering, even while living with chronic pain