The Whispered Roar – a Column by Shawna Barnes

How I’m Processing Grief With Myasthenia Gravis

Today I despise myasthenia gravis. I resent the eight years I had to fight for a diagnosis. I’m jealous of my able-bodied family members. But most of all, I loathe having myasthenia gravis. Some say there are seven stages of grief while other say there are five. Regardless…

This Is What Good Care Should Feel Like

On Aug. 8, I had an appointment with a new neurologist. I was apprehensive about it because he would be the second neurologist I’d see at Veterans Affairs (VA) since our move to Wisconsin. I was quite happy with the neurologist I’d met when we got here, when I…

Donate Plasma and Save a Life: Mine

It’s the last Monday of June. The last Monday of National Myasthenia Gravis Awareness Month. Last week, I shared some tips for both myasthenics and our friends and family on how you can continue to turn awareness into action long after this month is over. As the month…