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I have been housebound since my stem cell transplant and was starting to get rather crabby about the whole situation. I am used to independence — visiting friends and going to work — so this has been a very trying time. However, it has also been good…

Last weekend, I watched the movie “Wonder” again — for probably about the fifth time. The first day it was released in South Africa, I sat in the cinema crying my eyes out. Since then, I have watched it whenever I have spotted it showing on the television, as…

Doctors diagnosed me with myasthenia gravis at the end of my first year at university. I was symptomatic the entire year and running from specialist to specialist begging for a diagnosis. Most of that year is a blur, but one thing made the period bearable and memorable: my…

When someone with a chronic illness says they are tired, they don’t simply mean, “Oh, I could probably do with a nap.” They mean that their body is beyond exhausted, that they can’t keep their eyes open, and that doing simple daily tasks is just too much. Recently, I had…

“I’m going in for chemotherapy.” That was my response when people inquired about my treatment plan. “But you don’t have cancer.” That was the reply I got from most of them. “So it can’t be that bad. I mean, it can’t be real chemo, can it?” How do you determine…

I might have been dealt an unlucky hand in terms of my general health, but I believe I was the luckiest of all when it came to assigning significant others. I am blessed beyond measure with Tom, who is caring, sweet, and understanding. People can show they care…

A diagnosis of MG inevitably leads to several adaptations in daily life. These adaptations, in turn, result in functioning that is closer to normal. They also ensure a distance is created, prompted by the difference between my peers and me. The difference easiest to hide is a changing diet.

Being diagnosed with myasthenia gravis (MG) is a heavy burden to bear. In the years following my diagnosis, my medication dosages increased and I gained weight. I find it difficult to compare the literal and figurative weight of this disease. As a woman in her 20s, the weight gain was…

Last year, I had a port fitted. This is a small medical device placed under the skin just under the collarbone. It allows for drips to be set up without nurses having to dig around for a vein. It also frees up my hands and allows me to easily…

Scientific literature clearly establishes that weather, particularly temperature, can influence the severity of myasthenia gravis symptoms. Cold weather is infamous for being worse for pain and hot weather results in reduced muscle strength. Living in Africa, hot weather is no scarcity. This means that I dread the coming of…