I don’t recoil at the sight of a scar left by a transsternal thymectomy — the surgical removal of my thymus gland — three months ago. I’d prefer it wasn’t there, of course, but I’m starting to embrace it. The scar reveals a little about who I am, like…
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Around three years ago, I welcomed home an Italian greyhound puppy named Pablo. He changed my life for the better. Now, my boyfriend, Tom, and I have adopted another 1-year-old Italian greyhound. Blitz with a goofy grin. (Photo by Retha de Wet) His name is Blitz, which means…
Many years ago, my grandfather ended up in the hospital due to a bad fall. Luckily, he didn’t break any bones and was released after a brief stay. I don’t have strong memories from this experience, but one thing I do recall is the bright yellow “FALL RISK” wristband…
Those of us with myasthenia gravis (MG) sometimes blame the disease for causing negative emotional responses. But this can be an unhealthy and misguided approach. Sure, our adverse reactions to problems associated with MG may reflect our grief in response to…
Growing up, for lack of a better term, is very weird. I no longer understand what’s cool or not, I now repeat phrases my mother says (“All of these rappers sound the same!”), and my lower back can’t handle my odd sitting positions anymore. I didn’t think I would stay…
Like myasthenia gravis, being an introvert is a constant battle. I have been a wallflower for as long as I can remember. I never preferred group settings, particularly ones where I had to interact without my parents. As a child, it was easy to recognize that I was socially distinct.
I try to be honest about my shortcomings, but I have always struggled with asking for help. If you frequent my column, you may have realized that I’ve been missing in action. I was struggling and pushing my body to the extreme, when all I needed to do was stop…
I’ve never been great at asking for help. Ever since I was a kid, I always thought that asking for help meant I wasn’t as smart as everyone else. I was also petrified to ask a question that others would laugh at. There wasn’t a certain event or moment…
We’ve all experienced a time in our lives when we missed an important event. Maybe work prevented us from attending a family get-together, or perhaps celebrations were too far away to attend. Regardless of the reason, we’ve all felt that disappointment about missing out on a significant occasion. For those…
Lately, with the help of a new therapist, I’ve been making significant progress with my mental health. Looking forward to activities and planning for the future seems a little easier for me now, a year after my myasthenia gravis (MG) diagnosis. Still, as others with MG might understand, our minds…
Recent Posts
- Antibody levels may help track disease severity in children with MG
- I’m learning which conversations are worth having, and which ones aren’t
- Guest Voice: A strabismus diagnosis may have been my MG journey’s start
- MG patients 2 times as likely to have other autoimmune diseases
- What not to do when living with myasthenia gravis