The very first “code” my mom and I cracked together came long before I even had a diagnosis. Back when I was just a kid with mysterious symptoms no one could explain, we noticed that one thing always seemed to help: sleep. No matter how much pain, weakness,…
Lately, I’ve been repeating the same sentence to anyone who asks me why I don’t do something: “It’s not my priority.” But the more I’ve said it, the more it echoes inside of me. Why am I living in survival mode? Why am I only taking care of “priorities”? Then…
I went through a long phase in which I proudly followed a minimalist lifestyle. I was totally against gadgets, especially the small ones that seem unnecessary. Garlic crushers in the kitchen? Useless. Those mini massage tools advertised all over social media? Just clutter, or so I thought.
The first recommendation anyone gives you when you’re diagnosed with a chronic illness is always the same: rest. And for the past five years, I fully believed it. I told myself, and everyone else, that rest was the key to managing myasthenia gravis (MG). I built a life around…
I haven’t had a disease flare-up recently or a full physical and mental breakdown. Still, this year has been a roller coaster for me. Each month seems to follow a rhythm: For one week I’ll feel almost healthy, for two weeks I’ll feel extremely disabled, and then for another week…
I always try to keep a good attitude toward my myasthenia gravis (MG). I often say it’s a bit like having a clingy best friend who follows me around, whether I’m celebrating a win or collapsing in exhaustion. But there are days when MG isn’t just a shadow in…
Heat and cold are some of the most common triggers for flare-ups in people living with chronic illnesses. For me and my myasthenia gravis (MG), summer has always been the toughest season. Almost all of my breathing difficulties have happened during hot months. Over time, I realized I couldn’t…
Last weekend, I attended a training course on a psychological model that explains how each of us has different personality types depending on the situation we’re in, with one usually being predominant. As I listened, I couldn’t help but link it to my experience with myasthenia gravis (MG). So…
Note: This column was updated July 31, 2025, to clarify that the author fears temporary paralysis caused by severe muscle weakness, as opposed to a permanent paralysis. Yesterday, my brain and body collapsed because I was too tired and exhausted — not due to a myasthenia gravis (MG) flare-up…
Last week, I went outside almost every day, often to go to the office. It’s something I usually try to avoid. I like to keep a routine — one day off after two days of work — to give my body time to recover. But lately, I’ve been pushing myself…
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