I cried. All day. Usually, no matter the level of sadness or grief, I can shut off my emotions…
Shawna Barnes
Shawna N.M. Barnes is a writer, accessible website designer, and disabled veteran living in Cable, Wisconsin, with her husband. She was diagnosed with seronegative generalized myasthenia gravis (MG) in 2018 after seven years of advocating for herself within the VA’s medical system. She hopes that through her transparency, bluntness, and no-nonsense way of writing about life with her disease that she can help others see that there is hope after an MG diagnosis. Sometimes, we just have to get out of our own way to live our best lives.
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Articles by Shawna Barnes
“Breathe in. Hold the ball. Breathe out. Stroke the horse’s mane. Breathe in. Repulse the monkey.” OK, so maybe it…
“Maybe if you just exercised, you’d feel better.” “You look tired today.” “I don’t know how you do it.”…
Feeling so, so tired — the kind of fatigue that makes me wonder if I’m going to fall asleep standing…
People tend to take certain abilities for granted, refusing help even if the need arises. Call it pride, embarrassment, stubbornness, or…
Do you ever just sit there, staring into space, wondering which diagnosis you can attribute your latest symptom to? Maybe…
“That spot is saved for someone who really needs it, someone living with a disability.” You can unclench your fists…
Doctor to patient: “I went to medical school. I think I know what I’m doing and what is best.” Patient…
Post-traumatic stress disorder (PTSD) is one of those taboo topics many people don’t seem to want to talk about. Good…
What’s that word again? You know, the thing where you can’t remember and your thoughts are fuzzy? Oh yeah! Brain…