A day in the water is just what the doctor ordered
Healing doesn’t always look like rest and stillness. Sometimes it looks like kicking your legs with wild abandon in a…
Articles by Shawna Barnes
When the storm clears: Healing after the crisis no one saw coming
I’ve been in survival mode for so long that I forgot what it felt like to just be. To breathe…
An MG exacerbation lands me in the hospital again
It all started during a regular intravenous immunoglobulin (IVIG) infusion, part of my routine dance with myasthenia gravis (MG).
Why do we experience weakness and falls with myasthenia gravis?
I’ve seen these questions pop up in myasthenia gravis (MG) forums more times than I can count: “Why do…
Learning to recognize the signs and symptoms of stress
I used to think stress always looked like a dramatic meltdown. You know, ugly crying, yelling into a pillow, eating…
Is myasthenia gravis a rare disease, or is it just underdiagnosed?
Someone recently left a comment on one of my columns that made me pause and lean in. They wrote that…
30 minutes to Roz: How bulbar muscle weakness affects my voice
“I’m watching you, Wazowski. Always watching.” If you’re a cartoon fiend like I am, you likely recognize that quote from…
Riding the wave of euphoria that follows my IVIG infusions
Note: This column describes the author’s own experiences with intravenous immunoglobulin (IVIG) infusions. Not everyone will have the same…
Family, fatigue, and the fine art of showing up
A week ago, I packed up my cane, wheelchair, and excitement and hit the road for a cousin’s wedding. It…
With MG, even getting a pedicure requires careful consideration
During a recent weekend, I did something special: I took my son’s girlfriend out for her very first pedicure as…