How to Be Helpful When Myasthenia Gravis Awareness Month Is Over
“Hey, Shawna, I have a (friend/co-worker/family member) who was just diagnosed with myasthenia gravis. Can I connect the two…
Articles by Shawna Barnes
You’re Invited to the Barbecue! How to Make Summer Events MG-friendly
I traveled a long road to finally put a name to the crippling symptoms I began experiencing after…
Turning Awareness Into Action: How to Support a Loved One With MG
Yay for June! Do you know why I’m so excited about the sixth month of the calendar year? It never…
What a Difference VA Medical Care Has Made!
“Will my insurance cover it?” That’s a question I thankfully don’t have to ask when discussing various treatments with my…
Sometimes I Push Past My Line in the Sand, and It’s a Good Thing
I want to do everything! Especially after a period of time when I’ve not felt well enough to do anything.
IVIG and Me: How Having a Port Has Improved My Treatments
One common treatment for myasthenia gravis (MG) is intravenous immunoglobulin (IVIG). I was initially treated with IVIG for my…
Hobbies Keep Me Sane When Managing Chronic Illness
Hobbies can be a funny thing. It feels like some of us have many and could go broke supplying them,…
My Dinner Plate Theory Helps Explain Daily Energy Levels
“Stick a fork in me, I’m done!” “I don’t have enough spoons for this.” We’ve all heard various quips involving…
Building a New Care Team Is Tricky, but It’s Going Smoothly
Yee-haw, what a wild adventure that was! If you’ve read the last few columns I’ve written, you’ll know that…
A New Home Base Despite an Old Set of Woes
We made it! Seven states, 35 hours, and five weather types later, we arrived at our destination. Moving cross-country…