There are days when I feel like every day is Halloween because of the way I must live my life…
Shawna Barnes
Shawna N.M. Barnes is a writer, accessible website designer, and disabled veteran living in Cable, Wisconsin, with her husband. She was diagnosed with seronegative generalized myasthenia gravis (MG) in 2018 after seven years of advocating for herself within the VA’s medical system. She hopes that through her transparency, bluntness, and no-nonsense way of writing about life with her disease that she can help others see that there is hope after an MG diagnosis. Sometimes, we just have to get out of our own way to live our best lives.
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Articles by Shawna Barnes
“I haven’t showered in a week. Can you come over and hang out so I can safely take one?”…
“I wish I could stay home all day and take naps.” Does anyone else want to reach through your screen…
What do you do when life just gets to be too much? Too heavy? If you’re reading this, then I…
“My pet Fido makes me feel so much better. Where can I get him a service dog vest?” You can’t.
The caregiver. The parent. The big sister. The only child. The husband/wife/spouse. The honors student. The executive. The jock. The…
Did you know that Sept. 21 is the International Day of Peace? The United Nations established it in 1981, and…
Today I despise myasthenia gravis. I resent the eight years I had to fight for a diagnosis. I’m…
It’s something I’ve always read about in my research on myasthenia gravis (MG). I’d always hoped it would never…
When I first got out of the Army, I was unable to drive or take care of myself or…