We all do it. There’s a reason we have the phrase “keeping up with the Joneses,” which everyone knows and…
Shawna Barnes
Shawna N.M. Barnes is a writer, accessible website designer, and disabled veteran living in Cable, Wisconsin, with her husband. She was diagnosed with seronegative generalized myasthenia gravis (MG) in 2018 after seven years of advocating for herself within the VA’s medical system. She hopes that through her transparency, bluntness, and no-nonsense way of writing about life with her disease that she can help others see that there is hope after an MG diagnosis. Sometimes, we just have to get out of our own way to live our best lives.
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Articles by Shawna Barnes
Shedding tears in frustration. Missing football games. Giving foot rubs and having heart-to-heart conversations. Being teased because I was in…
What do you do when you are awakened by your son telling you that a dead tree just fell on…
So you have myasthenia gravis (MG). Some of your friends or family have distanced themselves from you. You take…
For the first time since my medical retirement from the U.S. Army in 2011, my myasthenia gravis (MG) is…
The eye roll. The “I’m not listening but want you to think I am” head nod. The silence. The…
“Umm … are you OK? Why does it look like you’re having a stroke? It sounds like you’re drunk. What’s…
My hygiene sucks. All of it. It’s better now, but that’s because I swallowed my pride and admitted to…
Sixty-one days, 8.7 weeks, two months, or one-sixth of a year — that’s how much time I spent…
Neon green snot runs out of my nose and down the back of my throat. A cough sounds like I’ve…