Living with myasthenia gravis keeps me stuck in survival mode
Lately, I’ve been repeating the same sentence to anyone who asks me why I don’t do something: “It’s not my priority.” But the more I’ve said it, the more it echoes inside of me.
My Bitter & Best Friend: MG — Sarah Bendiff
From the heart of North Africa, Sarah Bendiff shares her journey with myasthenia gravis. Diagnosed in 2019 after 13 years of searching for answers, she had to step away from her physics studies as her body resisted treatments. The digital opportunities that arose during the COVID-19 crisis in Algeria allowed Sarah to rebuild. Through digital marketing and content creation, she found strength and resilience, channeling her creativity to thrive in a remote, connected world.
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The healing power of sleep in my life with MG
The very first “code” my mom and I cracked together came long before I even had a diagnosis. Back when I was just a kid with mysterious symptoms no one could explain,…
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I’m starting to appreciate how MG seems to love gadgets
I went through a long phase in which I proudly followed a minimalist lifestyle. I was totally against gadgets, especially the small ones that seem unnecessary. Garlic crushers in the kitchen? Useless.
Gently testing the limits of my MG with more activity
The first recommendation anyone gives you when you’re diagnosed with a chronic illness is always the same: rest. And for the past five years, I fully believed it. I told myself, and everyone else,…
Stress is the real enemy when living with myasthenia gravis
I haven’t had a disease flare-up recently or a full physical and mental breakdown. Still, this year has been a roller coaster for me. Each month seems to follow a rhythm: For one week…
Sometimes myasthenia gravis whispers, ‘You’re not enough’
I always try to keep a good attitude toward my myasthenia gravis (MG). I often say it’s a bit like having a clingy best friend who follows me around, whether I’m celebrating a…
For surviving summer heat, the basics work wonders for me
Heat and cold are some of the most common triggers for flare-ups in people living with chronic illnesses. For me and my myasthenia gravis (MG), summer has always been the toughest season. Almost…
Applying various personality types to my life with myasthenia gravis
Last weekend, I attended a training course on a psychological model that explains how each of us has different personality types depending on the situation we’re in, with one usually being predominant. As I…
A fear of being paralyzed makes me push myself too hard
Note: This column was updated July 31, 2025, to clarify that the author fears temporary paralysis caused by severe muscle weakness, as opposed to a permanent paralysis. Yesterday, my brain and body collapsed because…
After decades with MG, I finally know what I want from others
Last week, I went outside almost every day, often to go to the office. It’s something I usually try to avoid. I like to keep a routine — one day off after two days…
Working through myasthenia gravis, one story at a time
It’s been 10 months since I started writing this column, and I can honestly say that it’s changed my life. My mindset, my emotional health, and even my relationship with myasthenia…
There’s no sugarcoating it when MG leads to stolen dreams and sorrow
June was an intense month for me. With the rising heat, my muscles are growing weaker, and with a packed work schedule, my mental health is starting to fall apart, too. Recently, I shared…
