Traveling to Paris was a dreamy adventure, despite my MG
Traveling was one of my biggest fears after my myasthenia gravis diagnosis in 2019. If I got tired at home easily, what would navigating an airport and exploring a bustling city feel like?…
My Bitter & Best Friend: MG — Sarah Bendiff
From the heart of North Africa, Sarah Bendiff shares her journey with myasthenia gravis. Diagnosed in 2019 after 13 years of searching for answers, she had to step away from her physics studies as her body resisted treatments. The digital opportunities that arose during the COVID-19 crisis in Algeria allowed Sarah to rebuild. Through digital marketing and content creation, she found strength and resilience, channeling her creativity to thrive in a remote, connected world.
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Can living with myasthenia gravis have benefits?
Some people think disabilities are just excuses and free-pass cards that come with countless advantages. After a recent experience, I’ve realized they might be right sometimes — but not in the way they think.
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I wouldn’t trade my new cat for the world, despite the difficulties
I must be transparent with you from the start: I’m not writing this because my cat isn’t cuddly and doesn’t love me the way I love her. I’d like you all to meet Philotte,…
Symptoms of myasthenia gravis and my period make life difficult
The day I was diagnosed with myasthenia gravis (MG), the doctors briefed me on the essentials: symptoms, treatment plans, and what to expect from life with a chronic illness. But what no one…
MG has taken so much from me, including my style and fashion
My bitter and best friend myasthenia gravis (MG) takes up a lot of space in my life: in my relationships, my daily routine, and my career choice. I’ve also realized that it’s completely…
Volunteering is important to me, so how do I do it with MG?
The first thing I did when I started college was to search for clubs and associations where I could volunteer. Back then, I believed that even if I wasn’t wealthy, I had my health…
How people in public spaces may react to invisible disabilities
We all like to observe others in subways, buses, or streets, and when I do it, I find myself asking, “What are they thinking about? How is their life going? Do they have the…
How I’m facing my fears in life with a rare disease
Last year, I woke up to terrible news: One of my colleagues had passed away. Although I didn’t know her personally, I knew she’d lived with a chronic illness and was an advocate for…
The subtlety of my MG symptoms made diagnosis a challenge
If you’ve read my diagnosis story, you know it took me a decade to find out I have myasthenia gravis (MG). But why? Didn’t I see professionals? I did. Weren’t they familiar…
Living with myasthenia gravis, I invented a job to be able to work
Even though my symptoms started early, I couldn’t make a strategic plan for higher education because I wasn’t diagnosed with myasthenia gravis (MG) until my second year of college. I’d chosen my dream…
What friends may not understand about living with myasthenia gravis
Ahead of every family reunion, plan, and event, I fear saying the famous “I’m tired, I can’t” — not because of how it might affect me, but because of how others might react. Normally,…
How a decade-long search for answers led to an MG diagnosis
It’s been five years since I was diagnosed with myasthenia gravis (MG), an autoimmune neuromuscular disease. MG makes me feel tired and short of breath, and sometimes I struggle to speak clearly. It…
