An open letter to my younger self about life with myasthenia gravis
This column is a letter to my 9-year-old self. I’m choosing this age because I was lost then — and not only because of my disease. It was my last year of primary school…
My Bitter & Best Friend: MG — Sarah Bendiff
From the heart of North Africa, Sarah Bendiff shares her journey with myasthenia gravis. Diagnosed in 2019 after 13 years of searching for answers, she had to step away from her physics studies as her body resisted treatments. The digital opportunities that arose during the COVID-19 crisis in Algeria allowed Sarah to rebuild. Through digital marketing and content creation, she found strength and resilience, channeling her creativity to thrive in a remote, connected world.
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Fasting during Ramadan is complicated with myasthenia gravis
During the month of Ramadan, Muslims all over the world fast from dawn until sunset, meaning no food or drink for anywhere between eight and 12 hours, depending on the region. It’s the holiest…
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Can artificial intelligence improve chronic disease management?
There’s been much excitement lately around artificial intelligence (AI) — especially since generative AI became widely accessible. What used to be a complex, almost unreachable tool is now part of daily conversations, transforming the…
How I manage my image to live with myasthenia gravis
I recently made peace with the fact that we almost always judge the book by its cover. It’s just what humans do. We believe what we see. And having a disease that’s not always…
The costs associated with my invisible disability
By the end of each month, I always find myself asking: Where does my money go? I work as a freelancer in the digital marketing field, and I also teach courses in the same…
How alternative healing methods helped me walk again
Note: This column describes the author’s own experiences with various alternative therapies. Not everyone will have the same response to these methods. Consult your doctor before starting or stopping a therapy. During a…
Cooking can be a challenge with myasthenia gravis
I discovered my love of cooking when I was 12. While I enjoyed every part of my learning journey, my mom didn’t fully trust me in her kitchen, so I didn’t get to cook…
How I navigate fun days without crashing due to MG
Seventeen years of living with myasthenia gravis (MG) has made me a pro at navigating daily life. I’ve learned how to handle both routine tasks and high-pressure days because being sick doesn’t mean…
Chasing dreams that myasthenia gravis won’t allow
When I was a kid, I had a list of things I wanted to do when, as the adults used to say, I’m “old enough.” I haven’t forgotten that list, because now I am…
We’ve come to know that being ‘rare’ isn’t always a good thing
When I was a kid, still waiting for my diagnosis, I remember overhearing doctors say, “It might be an orphan disease,” “It could be rare,” “This might be a special condition.” At that time,…
Why I dread going to doctor appointments
Here we are again: I have new symptoms. And no, I am not excited about seeing more doctors. After spending 10 years searching for a diagnosis before finally finding out I have…
Working with chronic illness makes keeping my word to clients hard
Whether it’s a work meeting, family gathering, or friendly meetup, I always feel the need to mention that I might have to cancel due to my chronic illness. But most people don’t seem to…
