MG Distracts Me From Healing From Trauma
Trauma can result from scary, emotionally disturbing, or threatening events. Any event can be traumatic, depending on how the person perceives it. The effects of trauma Trauma can have harmful effects on…
Obstacles Can Excite Creativity — Jodi Enders
Jodi resides in Florida, where she loves to fossil hunt and paddle with manatees in the springs. Jodi hopes to enhance the perspectives and struggles of those living with MG through her anthropological specialties in cultural sensitivity, and by providing resources to marginalized individuals while engaging digital communities. Jodi aims to share lived experiences with MG to help spread compassion and mindfulness globally. Jodi also works as a forum moderator for this site.
We Need to Stop Feeling Like a Nuisance
I believe it’s common for those with chronic illness to dwell on the fact that we can feel like a burden to others. Life with a disease, especially right after diagnosis, can make us…
Traveling With MG for the First Time
Going on road trips is one of my passions. I love it because it is better for the environment than flying, and traveling in a car allows for a healthy mix of adventure and…
3 Months After Surgery, the Healing Still Hurts
I don’t recoil at the sight of a scar left by a transsternal thymectomy — the surgical removal of my thymus gland — three months ago. I’d prefer it wasn’t there, of course, but…
Let’s Not Discount the Effect of Ableism on Our Emotions
Those of us with myasthenia gravis (MG) sometimes blame the disease for causing negative emotional responses. But this can be an unhealthy and misguided approach.
Friendships Can Be Complicated as an Introvert With Myasthenia Gravis
Like myasthenia gravis, being an introvert is a constant battle. I have been a wallflower for as long as I can remember. I never preferred group settings, particularly ones where I had to interact…
Making Progress With Mental Health After Diagnosis
Lately, with the help of a new therapist, I’ve been making significant progress with my mental health. Looking forward to activities and planning for the future seems a little easier for me now, a…
Coping With the Loss of My Beloved Career Path
The most devastating blow since my myasthenia gravis diagnosis a year ago has been the loss of my career path, which was my passion. My symptoms began a month before the last semester of…
Preventing Others From Taking Advantage of Our Spoons
Kindness is not a pass for people to take advantage of us or treat us poorly. We can be compassionate and still say no to being treated inadequately. Those of us with myasthenia gravis…
Living in a World Where Many Undermine Public Health
Living amid a pandemic can and should be alarming to everyone. However, not everyone understands how individual actions can affect others. Therefore, people with compromised immune systems, such as those of us with…
Resting and Resetting With Positive Intention
There is no shame in spending time on something that didn’t work out the way we had planned, regardless of how long we spent on it. At some point, those of us with myasthenia…
