How my myasthenia gravis journey is opening new doors

Jodi Enders reflects on her favorite place for creative inspiration and relaxation: the Everglades in Florida. (Courtesy of Jodi Enders)

This is Jodi Enders’ story:

I was diagnosed with myasthenia gravis (MG) just before the final semester of my undergraduate degree in anthropology, with an emphasis on Southwestern archaeology. It was a challenging time, but with the help of intravenous immunoglobulin therapy, prednisone, and CellCept (mycophenolate mofetil), I managed to remain stable enough to finish school.

The timing of the COVID-19 pandemic made things more manageable as classes went online, and my professors were understanding about my difficulties with speaking, handwriting, and completing assignments. They worked with me to find accommodations that helped me finish.

That final semester, I began to reflect realistically on my future. While I loved archaeology, I knew it can be physically strenuous and could potentially trigger MG flares. I started exploring anthropology, which might be more MG-friendly in the long run. A few months after graduation, I was offered an opportunity to moderate the Myasthenia Gravis News forums and write columns about my experience with MG. This chance to connect with others, share my voice, and contribute to the community brought a sense of purpose that balanced many of the negatives of life with MG.

As I gradually entered remission and tapered off treatment, I found myself reconnecting with plein air painting, a profession deeply rooted in my family. My mom and grandfather are painters, and I began painting weekly with a local group for fun. Although I once saw art as a hobby, my MG journey helped me realize I didn’t need to pursue a traditional nine-to-five career. Instead, I could have multiple part-time jobs to generate income — flexible, self-paced roles that respected my body’s needs.

Over time, I’ve built side businesses and expanded my work with Bionews, the parent company of this website, and I now serve as the social media manager for Myasthenia Gravis News. Art has become my primary focus. I’ve made prints my priority method of selling, as creating original pieces once and selling them long-term allows me to earn income even during flares or periods when I physically can’t paint. It’s a sustainable, MG-friendly approach to an art career.

MG drastically changed my original career path, but it also opened unexpected doors. I’ve found fulfillment in advocacy, creativity, and building a lifestyle that adapts to my health, not the other way around.

In recognition of Myasthenia Gravis Awareness Month in June, the Myasthenia Gravis Community Spotlight campaign features a series of stories highlighting the real-life experiences of people affected by myasthenia gravis, written in their own words. Follow us on Facebook, Instagram, or X for more stories like this, using the hashtag #MGSpotlight, or read the full series here.