Chasing dreams that myasthenia gravis won’t allow
When I was a kid, I had a list of things I wanted to do when, as the adults used to say, I’m “old enough.” I haven’t forgotten that list, because now I am…
My Bitter & Best Friend: MG — Sarah Bendiff
From the heart of North Africa, Sarah Bendiff shares her journey with myasthenia gravis. Diagnosed in 2019 after 13 years of searching for answers, she had to step away from her physics studies as her body resisted treatments. The digital opportunities that arose during the COVID-19 crisis in Algeria allowed Sarah to rebuild. Through digital marketing and content creation, she found strength and resilience, channeling her creativity to thrive in a remote, connected world.
Featured Post
I’m grateful to MG for teaching me how to live life fully
There’s a French saying I’ve always loved: “croquer la vie à pleines dents,” which literally means “to bite into life with full teeth.” It’s used to describe someone who lives passionately, who devours every…
Read more
Fasting during Ramadan is complicated with myasthenia gravis
During the month of Ramadan, Muslims all over the world fast from dawn until sunset, meaning no food or drink for anywhere between eight and 12 hours, depending on the region. It’s the holiest…
We’ve come to know that being ‘rare’ isn’t always a good thing
When I was a kid, still waiting for my diagnosis, I remember overhearing doctors say, “It might be an orphan disease,” “It could be rare,” “This might be a special condition.” At that time,…
Why I dread going to doctor appointments
Here we are again: I have new symptoms. And no, I am not excited about seeing more doctors. After spending 10 years searching for a diagnosis before finally finding out I have…
Working with chronic illness makes keeping my word to clients hard
Whether it’s a work meeting, family gathering, or friendly meetup, I always feel the need to mention that I might have to cancel due to my chronic illness. But most people don’t seem to…
Because of myasthenia gravis, I don’t drive anymore
For the longest time, I thought the biggest obstacle to driving would be my foot pain. I never considered that myasthenia gravis (MG) would affect my ability to drive. My foot pain —…
Finding the perfect workout for myasthenia gravis
Like many others, being diagnosed with myasthenia gravis was a turning point in my life. Before my diagnosis, school sports were a nightmare. Running, basketball, and other…
How I’m an MG drama queen (of a sort) in my desire for attention
I often talk about strength and resilience because I feel a deep need to share these traits with others who are navigating chronic illnesses or invisible disabilities. Motivating and inspiring others is a blessing…
Can living with myasthenia gravis have benefits?
Some people think disabilities are just excuses and free-pass cards that come with countless advantages. After a recent experience, I’ve realized they might be right sometimes — but not in the way they think.
Traveling to Paris was a dreamy adventure, despite my MG
Traveling was one of my biggest fears after my myasthenia gravis diagnosis in 2019. If I got tired at home easily, what would navigating an airport and exploring a bustling city feel like?…
I wouldn’t trade my new cat for the world, despite the difficulties
I must be transparent with you from the start: I’m not writing this because my cat isn’t cuddly and doesn’t love me the way I love her. I’d like you all to meet Philotte,…
Symptoms of myasthenia gravis and my period make life difficult
The day I was diagnosed with myasthenia gravis (MG), the doctors briefed me on the essentials: symptoms, treatment plans, and what to expect from life with a chronic illness. But what no one…
