My journey to finding a myasthenia gravis diet that works for me
Before I was diagnosed with myasthenia gravis (MG) in 2019, my symptoms led me to think that my body was lacking vitamins and nutrients. After my diagnosis, I blamed my weight gain on…
My Bitter & Best Friend: MG — Sarah Bendiff
From the heart of North Africa, Sarah Bendiff shares her journey with myasthenia gravis. Diagnosed in 2019 after 13 years of searching for answers, she had to step away from her physics studies as her body resisted treatments. The digital opportunities that arose during the COVID-19 crisis in Algeria allowed Sarah to rebuild. Through digital marketing and content creation, she found strength and resilience, channeling her creativity to thrive in a remote, connected world.
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I’m grateful to MG for teaching me how to live life fully
There’s a French saying I’ve always loved: “croquer la vie à pleines dents,” which literally means “to bite into life with full teeth.” It’s used to describe someone who lives passionately, who devours every…
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On representation, community content, and chronic illness
Last year, when I started a new job, I was asked to create funny, educational videos. The first topic I tackled was “Celebrities You Didn’t Know Have an Invisible Disability.”…
Taking MG to the mall: My tips to make shopping work
I was never really a sports fan, and there weren’t many other cultural activities around where I lived. But as I got older, I soon found my passion: shopping. I know, I sound like…
An open letter to my younger self about life with myasthenia gravis
This column is a letter to my 9-year-old self. I’m choosing this age because I was lost then — and not only because of my disease. It was my last year of primary school…
Can artificial intelligence improve chronic disease management?
There’s been much excitement lately around artificial intelligence (AI) — especially since generative AI became widely accessible. What used to be a complex, almost unreachable tool is now part of daily conversations, transforming the…
How I manage my image to live with myasthenia gravis
I recently made peace with the fact that we almost always judge the book by its cover. It’s just what humans do. We believe what we see. And having a disease that’s not always…
The costs associated with my invisible disability
By the end of each month, I always find myself asking: Where does my money go? I work as a freelancer in the digital marketing field, and I also teach courses in the same…
How alternative healing methods helped me walk again
Note: This column describes the author’s own experiences with various alternative therapies. Not everyone will have the same response to these methods. Consult your doctor before starting or stopping a therapy. During a…
Cooking can be a challenge with myasthenia gravis
I discovered my love of cooking when I was 12. While I enjoyed every part of my learning journey, my mom didn’t fully trust me in her kitchen, so I didn’t get to cook…
How I navigate fun days without crashing due to MG
Seventeen years of living with myasthenia gravis (MG) has made me a pro at navigating daily life. I’ve learned how to handle both routine tasks and high-pressure days because being sick doesn’t mean…
Chasing dreams that myasthenia gravis won’t allow
When I was a kid, I had a list of things I wanted to do when, as the adults used to say, I’m “old enough.” I haven’t forgotten that list, because now I am…
