Kristina Kelly holds her dog Noah. (Courtesy of Kristina Kelly) This is Kristina Kelly’s story: It took five neurologists, five years, and a lot of being told “but your labs are normal” before I was finally diagnosed with seronegative myasthenia gravis (MG). Like so many others, my journey…
Throughout June, Myasthenia Gravis News is recognizing Myasthenia Gravis Awareness Month with a variety of stories that represent different perspectives on life with myasthenia gravis that we hope help to inspire and empower our readers. These stories highlight some of the unique challenges of living with myasthenia gravis, as well as stories of hope, inspiration, and other topics that help to generate awareness among the myasthenia gravis community. Follow along with the series here or visit us on Facebook, Instagram, or X using the hashtag #MGSpotlight.
Stefanie Shea and her husband, Dave Akers, attend a recent concert. Shea is in her power wheelchair, which enables her to leave the house and participate. (Courtesy of Stefanie Shea) This is Stefanie Shea’s story: I’m a musician, artist, advocate, and nerd who has lived with myasthenia gravis…
Mike Stabile holds his grandson, Alex Stabile, while in between myasthenia gravis flare-ups. (Courtesy of Mike Stabile) This is Mike Stabile’s story: There are no physical signs that I have myasthenia gravis (MG). My last flare-up ended in July, 11 months ago. Previous flare-ups would last two to…
Retha De Wet enjoyed three happy years in remission from myasthenia gravis, during which time she gave birth to her daughter. But her symptoms have recently reemerged. (Courtesy of Retha De Wet) This is Retha De Wet’s story: I have always wanted to be a mother. I’ve always wanted…
Jasmine Nathan was diagnosed with generalized myasthenia gravis with thymoma in 2018, but now has her gMG fully managed. (Photo courtesy of Jasmine Nathan) This is Jasmine Nathan’s story: It was the summer of 2018 in Chicago. I was trying to balance everything. I had a husband, a stepson,…
Recent Posts
- Grieving the loss of independence after an MG diagnosis
- How I’m able to continue teaching while living with myasthenia gravis
- Benefits of statins may outweigh risks for many living with MG
- Problems with disturbed sleep affect 2 in 3 people with stable MG: Study
- Distinct immune profile found in treatment-resistant myasthenia gravis