My symptoms started 1.5 years ago with double vision then advancing to not steady on feet to muscle weakness and a burning pain that feels like your leg muscles that just climbed 10 flights of stairs. Not sure if my symptoms are getting worse and efforts to help are just not enough. IVIG infusions help some and less now so added Mestinon and again helps some but now this muscle pain is moving up my body to arms, shoulders, neck, back and the previous areas have less pain. Trying this for another month if stable but if not better will try another med but donโt want to due to side effects. Stage? Maybe continuing to get worse?