Lynette Wilson
Forum Replies Created
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I was walking home from our shops in Leeston NZ I found my eyesight didn’t seem right. When I got home I noticed my one of my eyelids was half way down. Rang Dr next morning which was a Monday. He thought I had had a stroke at the back of my eye.He said I needed to go to hospital straight away. Daughter took me there was a bed for me. After three days bloods test MRI and other tests. The neurologist said he was sure I had MG. Optical. That was Dec 2020. At the age of 76 Been on Prednisone and pyridostigmine ever since. Started at a high dose. Went down but back on 120mg & prednisone 10mg unable to go any further down as I have it returns. Eyesight cannot get my glasses that I was prescribed right. Never wore glasses before this MG started.
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i take 360mg a day. I went down to 120mg a day. But my optical MG came back. I am still taking prednisone with it. You may have an allergic reaction to Pyridostigmine. As I don’t have any trouble. It will be interesting if someone comes back to you with the same problem. As it does work for me. All the best
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i take 360mg a day. I went down to 120mg a day. But my optical MG came back. I am still taking prednisone with it. You may have an allergic reaction to Pyridostigmine. As I don’t have any trouble. It will be interesting if someone comes back to you with the same problem. As it does work for me. All the best
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I there I have had thyroid conditions of which I have been taking medication since I was around 45 the under working identification one. And only last year at 76 did I get MG optical. At this stage no one has mentioned this. So for me I don’t think it has any connection.
Regards
Lynette -
Hi Paul
I live in New Zealand down the bottom of the globe.I would have thought Americans neurologists would have been up to date with Myathena Gravis. We are a very small country 5 million now. But I was diagnosed with this disease with 4 days. My Dr thought I may have had a stroke behind my eye. Was sent in immediately to our main hospital here in Christchurch. Had MRI and other tests. They came back with Myasthenia gravis straight away. So I am extremely lucky. I first got it last year when I was 76. And it came back a month ago. Was down to 3mg predisone and Pryndostigmine. Now i am back to 20mg Pred and 360mg of Pyridostigmine.
hope you are copping with this very unusual disease.
lynette
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Unusual different weird