Viewing 14 reply threads
  • Author
    Posts
    • #19676
      Jodi Enders
      Keymaster

      Myasthenia gravis is a unique illness. All of us living with MG have varying illness experiences. I have dealt with frustration, feeling like the odds are stacked against me often, and I have also been very grateful for the lessons MG has taught me young. So I would describe my journey living with MG as illuminating, demanding, and rewarding.

      How would you describe your perspective of life with MG in 3 words?

    • #19685
      Pdro Hrtdo
      Participant

      1.-Frustration: it was annoying not know what was happening to my body for over 3 months.

      2.-Discovery: I had to learn to listen to my body and to be more conscious of my every day habits.

      3.-Appreciation: I was pushed to appreciate the little things in life I didn’t have or couldn’t do after myasthenia gravis. I also had to work on my anxiety and for that I’m very grateful.

    • #19688
      EDWARD CLAGHORN
      Participant

      Every day different

    • #19690
      Jennie Morris
      Participant

      Whack-a-mole

      • #19720
        Troy
        Participant

        LOL… Absolutely love it!  It’s is like whack-a-mole. It keeps popping up and you best it down and it pops up again!  Beautifully described

      • #19763
        Laurie Eason
        Participant

        Yes! Too much like it!

    • #19691
      Jerry Trapp
      Participant

      A consistent deterioration

    • #19692
      Joanne Gurion
      Participant

      Anxiety

      Acceptance

      Adaptation

    • #19693
      Beverly Bounds
      Participant

      Numbness
      Sadness
      Acceptance

    • #19707
      Leigh
      Participant

      Frustration

      Sadness

      Pivot

    • #19714
      William E Freeman
      Participant

      My words have already been stated, accept I might include stubbornness – meaning not accepting completely the limitations imposed upon me. I try and do as much as I can, as often as I can and not allow MG to totally ruin my quality of life. This may mean rest periods, pain periods, but I want to remain independent for as long as I can.  I force myself to be active, even if only for short periods of time and my activity may be reduced or limited.  I refuse to allow MG to beat me.

    • #19717
      Celeste M Matthews
      Participant

      It really sucks.

    • #19719
      Troy
      Participant

      ITS MY BODY!

    • #19722
      Bill Suphan
      Participant

      Ruined my retirement.

    • #19724
      Douglas Manning
      Participant

      My neverending journey

    • #19742
      David S
      Participant

      It still sucks.

    • #19744
      Jeannine Edgerley
      Participant

      Never ending and sadness.

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