[Thomas Arndt]

The same thing happened to me, but not as badly (I still could hear a bit). However, it never occurred to me that it might have something to do with Myasthenia gravis (I have ocular Myasthenia). Blaming it on the air conditioning and high humidity (I’m retired and live in Bali, Indonesia), I put on a t-shirt and socks at night and took extra vitamin C with zinc, which altogether helped.

[Thomas Arndt]

Hi,

I have had double vision for almost three years and have been using prism glasses for 1.5 years, which usually help. Since I work a lot on the computer and mobile phone, my eye muscles tire particularly quickly.

I read on the internet that vitamin D in high doses was a successful treatment for Myasthenia in Brazil. I have therefore read a lot about vitamin D and it has convinced me that adults need 4000 UE a day and older people double that amount. For almost a year now, I have been taking 5000 units a day, now 7000 units. That is still far away from the high doses which were used in Brazil. As a precaution, I have my vitamin D level checked every six months, so far it has always been in the average range.

For a month now I’ve had the feeling that my eye muscles don’t tire as quickly as usual. Of course, I cannot say whether this was due to the vitamin D administration, but I suspect it was.

After everything I’ve read about vitamin D so far, I can only advise everyone to give it a try. My hope is that in the long run it could bring relief from the ocular Myasthenia symptoms.

Of course, everyone has to decide this, I would also discuss this with my neurologist.

Thomas

[Thomas Arndt]

Hi Dev,

what I forgot to write is that I am “ear healthy” now with a normal hearing. If I have the feeling that the “ear infection” could come back (it happens from time to time), then I take two vitamin C tablets with zinc (100 mg each) as a precaution, which helps.

I also took during the time when I had hearing problems
Ibuprofen (400 mg each) once or twice a day (over a period of about two weeks), which also helped.

Identical to your case, I saw three doctors (two of them ear specialists), all of them came to the conclusion that everything was fine with my ear, which supports your thesis that the hearing problems could be related to Myasthenia.

I hope you will be able to hear again soon and I wish you good health.

Thomas

[Thomas Arndt]

Seems that we have the same problem. What medication do you get?

[Thomas Arndt]

I am a member from Germany, 69 years old and for three years I have had permanent double vision. My ophthalmologist prescribed me permanent prismatic glasses, which have so far worked perfectly. But unfortunately, my vision is getting worse and worse and I suspect that soon the prism glasses will no longer help either. My neurologist prescribed half a tablet of Mestinon (90 mg + 90 mg) twice a day and an additional 60 mg in the evening, but I don’t have the feeling that this really helps. An attempt with Prednisone (30 mg daily for 2 weeks, then 5 mg less per week) did not yield anything.

Unfortunately, there are few information about ocular Myasthenia. I would therefore be interested in which medication has improved double vision in you.