

stevesr
Forum Replies Created
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Paul. Regarding your double vision issues. BTW this is for anyone else reading who suffers from double vision. Make an appointment with an ophthalmologist. Discuss your MG disease and then ask about putting a prism i to your eyeglasses. If you do not wear eyeglasses then the can put a prism I to clear glass in eyeglasses. The prism is a gamechanger. It immediately corre ted the double vision. Now you probably will get it again when you take your glasses off but I’ve learned to watch TV in bed on a double screen. Please look into prisms. They changed my life.
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stevesr
MemberFebruary 11, 2025 at 4:46 pm in reply to: Do you have other health conditions besides MG?I deal with chronic pain syndrome resulting from some severe military related injuries. I am currently participating in a pain management program through the VA. So no recreational drugs, gummies etc due to the compliance at a Federal Level. I have been in the program for over 25 years. I am also in constant AFib. This was discovered about 3 months ago when I had an MG event that landed me in the ICU for 4 days. So I manage my pain issues, my heart issues and my MG issues. Oh Happy Days!!
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I was diagnosed with GMG 2 years ago. I just turned 72 last week. Because of other injuries and issues being delt with, I am 100% under care of the VA in Minneapolis. I have balance issues all the time. Dizziness is also an issue especially when getting from a lying or sitting position to standing. I have also have severe dizziness if I turn my head sharply only to the left. I use a cane every where I go except at home. I know my floors and my walking area is not very big so if I lose my balance I can just hit a wall and keep on keeping on!! I am currently taking prednisone and cellcept. Pyridostigmine did nothing for me and IVIG did very little also. My vision is really bad but has improved greatly due to my ophthalmologist introducing a “prism” into my eyeglasses that corrects double vision. I am very surprised to see as many people that there are here in their 60’s, 70’s and older. A lot of times I feel like I am out here alone dealing with this, some military injuries and of course all of our friend……OLD AGE.