Starlet Culp
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I had my first Rituxan infusions in September 2022. I had the infusions on the 4 Tuesdays of the month. I experienced itchy skin and the rate was slowed considerably. i had no other side effects at that time.
My 2nd round of Rituxan infusions are being given this month on Tuesdays again. My 1st infusion went fine. No side effects. My next infusion I received a syringe of Benadryl just like i always do. I immediately got very sleepy and slept soundly in the chair for nearly 3 hours. What was most troubling was that night I couldn’t fall asleep until 5 am. Yesterdays infusion I wasn’t affected by Benadryl yet I was only able to sleep a few hours last night.
I also experience more fatigue than normal as well as cheers.
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Yes, Larry. The Assistance Fund is located in Florida. They are an organization which will help with out-of-pocket expenses for certain rare diseases. I believe there are over 50 diseases that are eligible, and MG is one of them. I would start by going to their website because they have all the information listed there. I have used them for around five years and it’s made all the difference in the world to me. Good luck.
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I began Rituxan infusions in Sept. of this past year. I had 1 per week for 4 weeks. My next series is in March.
I began feeling like I had more energy with 6 weeks or so. The mild swallowing and speech issues disappeared also. As time goes on I’ve noticed a slight return of the bulbar issues as well as the ocular symptoms (ptosis, double & blurry vision).
When I see my neurologist next month, I’m going to ask if we can increase my mestinon. And, I look forward to my next round of Rituxan in March!