[Rudolph C Bullman]

Azathioprine, along with pyridostigmine, has been a game changer for me.  I have experienced no hearing loss, and all previous symptoms are well under control.  The azathioprine was added after a serious myasthenic crisis event that had me in the hospital for 14 days.  During hospitalization I received the IVIG treatment and was also put on prednisolone, but was able to wean off of it after about six months.

[Rudolph C Bullman]

I experienced diplopia on and off for several years before I was diagnosed with MG in 2019. During those episodes I wore an eyepatch, and found that within a couple of weeks my body was compensating for the double vision—at least it was more of an inconvenience than anything else. The only problem I experienced with driving was pulling up to any drive-in window or ATM; being aware of the loss of depth perception I was cautious and often found myself too far from the window to reach it without opening the car door. I had no trouble at all with driving on the Interstate. In January 2021 I suffered a Myasthenic crisis with multiple symptoms. I was hospitalized for 14 days (3 of them on ventilator), had the 5-day IVIG treatment, and added Azipriothin and prednisone to my pill regimen. After discharge from the hospital I increased the AZ by 60mg per month until I reached 300 mg per day. I also began cutting back on the prednisolone by 10mg per month until I no longer needed it. Over a period of six months all the MG symptoms began disappearing. The diplopia went away in the third month. So far things are holding, with no symptoms at all for the past 7 months. Thank God! My prayers for all who are dealing with MG, and especially diplopia.

[Rudolph C Bullman]

I have experienced watery, jittery eyes as a side effect of Mestinon, usually occurring about an hour after taking the mestinon. My eyes clear up after a few mnutes. My neurologist prescribed glycopyrolate to lessen the negative side effects of the mestinon. It generally helps, but there are days when I still have to deal with jiettery, watery eyes.