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  • MYASTHENIA GRAVIS
    My Story

    I was always very active, outdoor oriented. Then in 2009 I was diagnosed with aggressive prostate cancer, had robotic prostate surgery, all within a month. I went back to teaching in August, got the H1N1 flu and was out for about a month. Then in December I developed pneumonia and was out most of that month.

    In January 2010 I woke up one morning, sat down to my cup of coffee. I started feeling weak and my arms and hands were trembling so bad I couldn’t hold my coffee cup. I would have to lean against the walls of the school hallways as I walked. I thought I had Parkinson’s and saw a neurologist.

    My neurologist diagnosed me with general MYASTHENIA GRAVIS and said I was very close to a MYASTHENIC CRISIS. He admitted me to the hospital, started me on a regime of 39 plasmapherisis treatments and meds. I had to retired from teaching that fall. Life has been very difficult but rewarding.i have been through one remission but it only lasted less than a year and the battle with MG has been a daily, even hourly struggle with muscle strength and breathing. I have learned that each breath is a gift from God and that my strength comes from Him.

    Family and friends won’t always understand how MYASTHENIA GRAVIS affects a person. They may call you lazy, bum, they may get angry and upset at you for not being able to do what you used to do. Your marriage or relationship may fail because of MG.

    The one thing that a person with MG has to remember is that YOUR HEALTH, PHYSICALLY, MENTALLY, EMOTIONALLY and SPIRITUALLY affects your disease. You MUST MAKE YOUR HEALTH YOUR PRIORITY!

  • I will be honored to share my story of this disease called MG. I’ve had it since 2010.