[MikeS]

I was “fortunate” to be hit with late-onset MG.  1st event was only diplopia.  2nd and most recent included diplopia, drooping eyelid, difficulty swallowing and chewing, slurred speech and facial muscles weakness.  I didn’t receive the diagnosis until the 2nd event.  I now have Mestinon on standby for the next event.  At this point I don’t have any clues about my potential triggers or how long they might take to manifest the MG.  Any hints or suggestions for this newbie on what potential triggers to look for or avoid?  Any advice or suggestions are much appreciated.

Mike

[MikeS]

In January 2020 I developed diplopia.  The ER ruled out everything they could think of.  They referred me to a Neurologist.  The Neurologist had me try every test she could think of that might prove MG, but everything was negative.  The diplopia disappeared after 2 months and the MD decided to r/o MG.  This summer I developed diplopia (again), slurred speech, difficulty swallowing, drooping eyelid, and weak facial muscles.  This time the (same) Neurologist confirmed MG (yay?).  I’m 68, so it’s late-onset.  So, yeah, apparently even good MDs find it sometimes difficult to diagnose.