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  • mollie geiger

    Member
    June 10, 2022 at 7:48 pm in reply to: High Dose Steroids after IVIG?

    when i went into my first crisis and my lungs collapsed my older doctor put my on 80 mg of prednisone which was helpful of getting me able to breath on my own again after being intubated for three weeks. the week after i got out of the hospital i did a week of ivig and my larger muscles completely stopped working from the large does of prednisone so i had to be rushed back into the ICU where we did the plasma transfusion   .  the IVIG does NOT work for me but my doctor loves it.  i would love to find a younger neurologist that would have different strategies other than just prednisone/cellcept and that’s all. i’d really love to see a functional doctor as well and see what they can do for other aspects of my immune health